Regional Family Conference Tx

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Regional Family Conference   Tx
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National Foundation for Ectodermal Dysplasias says
Families from the region will share experiences, make connections and hear the latest from ectodermal dysplasias healthcare providers and experts. Don't miss out!

TOPICS TO BE DISCUSSED
- How the NFED can support your family
- Ectodermal dysplasias review
- Genetics and inheritance of ectodermal dysplasias
- Clinical trial update from Edimer Pharmaceuticals

HOTEL

The NFED has secured a block of rooms at a rate of $139/night. Please call the hotel directly at 866-716-8108 to book your room. Mention the NFED and book by April 20th to receive the special rate.

CONFERENCE FEES*
$35 per person (13 and older)
$20 per person (12 and under)
* Meals are included.
* Childcare available from birth to age 12 at no additional charge.

For more information, visit http://nfed.org/index.php/support/regional-family-conferences.

Register online at http://support.nfed.org/rfc

Sponsored by the National Foundation for Ectodermal Dysplasias, the XLHED Network and Edimer.
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By: National Foundation for Ectodermal Dysplasias

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